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Myeloma newly diagnosed

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (29)

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@cytogirl

I was able to see my lab results before my second visit with my oncologist. Since I have a medical background I was able to interpret many of the test results. I did my homework so that was prepared with some educated questions. Thus I was given detailed answers. I’m considered a low to moderate risk for developing a full blown multiple myeloma. And that’s the main reason for choosing the wait and see approach. Also I know I wouldn’t be able to manage daily life without my Humira. That, along with the side effects of the chemo, would be overwhelming.
Initially I was anxious, but once I made that decision, I was and still am okay with it.

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Replies to "I was able to see my lab results before my second visit with my oncologist. Since..."

@cytogirl Good for you, being okay with your decision. In my experience and talking to others, we sometimes hear thoughts and opinions from others who don't walk in our shoes. When we have a good medical team around us, we can ask those hard questions and get honest answers, and look at our unique situation.

Last summer I decided to see if I could try for a kidney transplant. After checking with six different transplant centers, it was clear I would need to get a stem cell transplant for the myeloma and show no evidence of disease [NED] before even being considered for transplant. In a very frank discussion with both oncologist and nephrologist, we spoke of my chances of successful stem cell procedure, recovery timeline and evaluation. Ever so grateful for their honesty and compassion, no sugar coating. The end result is no stem cell transplant, continued Myeloma treatment, continued dialysis.

Having a interactive medical team who includes your doctor handling the Humira treatment, and continued support from everyone, will go a long way to your peace of mind. How do you plan to handle any anxiety that may come your way in the future?
Ginger