How long before side effects from Hydrea start?

Posted by arecchie @arecchie, Oct 21, 2024

I just finished week two of Hydrea. How long before the side effects, if any, start? I'm trying to gauge when or if I'm getting the side effects.

Also, does anyone know if you lose some hair (thinning out) or a lot of hair? I know it's different for everyone, but a timeline and any help you can share would be appreciated.

Thanks so much.

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dax1million | @dax1million | Mar 7 8:33am

Lori, thanks so much for your comment, there is nothing that compares to prayer. Please everyone that reads this, pray for my husband we are praying for 5 years. We have been married 60 years and can’t imagine not being with each other.

arecchie | @arecchie | Mar 7 12:45pm

Sending you both healing thoughts, strength, perseverance and love.

pfscheyer | @pfscheyer | Mar 8 6:53am

In reply to @ronegeorge "Hydroxyurea tends to lower blood cells, so it's unlikely to help with low platelets. JAK inhibitors..." + (show)

My platelets recently went up to over 1200 due to a drug trial I was on. They took me off of that and increased my hydria which I have been on since 2021 to four pills a day, from 2. The side effects I've had from hydrea before this taking a thousand milligrams a day was my taste buds. I've gotten to the point where nothing taste good and it's hard to eat resulting in weight loss. My doctor says that Hydra will work to lower platelets. It's only been a couple of weeks so we'll see what happens.
I'm having severe symptoms of the higher platelets, dizziness, double vision, arm and leg weakness, numbness in lips and tongue. Very scary.

janemc | @janemc | Mar 8 7:01am

In reply to @pfscheyer "My platelets recently went up to over 1200 due to a drug trial I was on...." + (show)

pfscheyer, it won't happen overnight, but the HU (Hydra) will reduce those awful symptoms as it brings down your platelet count.

Be easy on yourself. To better days ahead!

pfscheyer | @pfscheyer | Mar 8 7:01am

In reply to @pfscheyer "My platelets recently went up to over 1200 due to a drug trial I was on...." + (show)

To add to my comment the loss of taste is basically the only side effect I had taking two pills a day until just recently. In the beginning I had some mouth sores, very minor. No loss of hair over that time. I hope this helps.
Praying for all.

pfscheyer | @pfscheyer | Mar 8 8:23am

In reply to @janemc "pfscheyer, it won't happen overnight, but the HU (Hydra) will reduce those awful symptoms as it..." + (show)

Thanks for the encouragement. I just had back surgery 6 weeks ago and before that horrible sciatica pain. I'm just a little tired of not feeling well. So thanks so much!

janemc | @janemc | Mar 8 9:27am

In reply to @pfscheyer "Thanks for the encouragement. I just had back surgery 6 weeks ago and before that horrible..." + (show)

It's really hard to be cheerful when we're exhausted and hurting.

Are you able to take it really easy this weekend? Find something that brings you comfort. Every little moment of peace, every tiny bit of rest, will help restore you.

pfscheyer | @pfscheyer | Mar 8 10:08am

In reply to @janemc "It's really hard to be cheerful when we're exhausted and hurting. Are you able to take..." + (show)

Thank you! I'm better able to rest now that my pain is gone.

andigold7 | @andigold7 | Mar 8 12:12pm

Prayers are the best gift a human can give. May you be blessed with Health, patience, strength Joy and faith ♥️🧚

ksyren | @ksyren | 5 days ago

In reply to @andigold7 "Prayers are the best gift a human can give. May you be blessed with Health, patience,..." + (show)

AMEN!

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