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I saw an infection disease doctor at the beginning of my journey in 2022. Consistently temping 100.0 and over. Typically I was a cool gal, normally 97.7, when I was sick 99 was miserable. I was told it was due to Covid affecting the hypothalamus where temperature is controlled. Temperature dysregulation. I am cold body hands, my feet burning and red and my temp will be 99.7. Any kind of activity such as getting dressed in a hurry raises me to 100.4. When the weather is warm, my temperature stays higher all day, 100+. Very uncomfortable causing my anxiety and panic to increase, also which I never had before. I am sorry you are also going through this, but know, you are not alone.

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Replies to "I saw an infection disease doctor at the beginning of my journey in 2022. Consistently temping..."

Did the infectious disease specialist have any suggestions on how to address your temperature dysregulation?

I live in Alaska and had long Covid for about a year. I am having trouble keeping warm compared to the last few winters. Thank you for this interesting Information about the hypothalamus. There are no doctors that specialize in long Covid where I live. I hope you fully recover soon

This is me, and you are the first person I've found who shares this issue! Low- grade temp when I exert myself or when I am in a hot environment (showering, etc). I finally had a thermoregulatory sweat test at Mayo a few weeks ago, and I basically don't sweat, except from my elbows and knees down and a little along my hairline. They think that's why I get too hot.

Both the neurologist and my cardiologist were quite concerned about my risk of overheating and heat stroke. Unfortunately, though there are meds if you sweat too much, there are none if you don't sweat enough, so they told me:
- Stay inside when weather is hot.
- Get a neck fan. There are some nice ones now that look like headphones.
- If you need to exert yourself outside, wear a wet T-shirt. It will work like sweat too cool you by evaporation.
- Try a cooling towel or cooling vest. I found a cooling towel in the sports section at Walmart that doesn't get drippy and that stays wet for days in its own special container, so it's ready when you need it and doesn't soak your clothes.
- Be aware of the risk of high temperatures. Heat stroke is no joke and can leave lasting effects on your body.

Sorry you are going through this. Know you are not alone. And let me know if you find any additional things that help! 🙂