My husband was diagnosed with myelofibrosis about a month and half ago. During a blood work up he had blood cells showing crazy cells and was sent to oncologist and hematologists, which sent him for a bone marrow biopsy. This did confirm he has myelofibrosis. I think when you get to the right specialist in this rare blood disease you will get the right answers and it will help you understand what is happening. I think sooner than later.