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Myeloma newly diagnosed

Blood Cancers & Disorders | Last Active: Mar 31 11:33pm | Replies (29)

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@gingerw

@cytogirl Welcome to Mayo Clinic Connect. Sometimes we need to consider our co-morbidities when dealing with SMM or myeloma. For me personally, I did not do any medications for the SMM, as we were concerned for the effects on my kidney function. We did the "wait and watch" approach like you. When my SMM morphed into multiple myeloma, treatment was coordinated between my oncologist and nephrologist to minimize the effects on my kidneys. Remember, it takes a team, including yourself, to handle all this!

As @pmm asked about your anxiety, I hope you are able to adjust your mindset to accepting the "wait and watch", and not let the anticipation rule your heart and head. Easy to say, I know, sometimes difficult to do!
Ginger

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Replies to "@cytogirl Welcome to Mayo Clinic Connect. Sometimes we need to consider our co-morbidities when dealing with..."

I was able to see my lab results before my second visit with my oncologist. Since I have a medical background I was able to interpret many of the test results. I did my homework so that was prepared with some educated questions. Thus I was given detailed answers. I’m considered a low to moderate risk for developing a full blown multiple myeloma. And that’s the main reason for choosing the wait and see approach. Also I know I wouldn’t be able to manage daily life without my Humira. That, along with the side effects of the chemo, would be overwhelming.
Initially I was anxious, but once I made that decision, I was and still am okay with it.