I'm scheduled for Pluvicto treatment 1 on 21 March. My wife and I have been searching for 'real' information - practical answers to real questions. appreciate any help:
1. What do patients do to sit on fabric furniture? (tarp, blanket, nothing??)
2. Wipe surfaces down with ??? Lysol? Simple Green? commercial cleaners?
3. Thoughts on food - any recommendations - positive or negative
4. Interesting post on the car air conditioner being on outside, not recirculating. Don't home HVAC units recirculate inside air?
5. Any hair loss?
thanks. Believing for the best, and believing His report.
Hi Michael,
You might have already done so, but try using the Search icon at the top of page to locate current Pluvicto discussions. There are a number of different threads with posts by men who have been on it. Once on a thread, feel free to click reply to posts that are of interest and write a post with your questions.
I wish you both all of the best in your upcoming treatment. I hope you will continue to post as you move ahead so we can all learn from your experience.
Bill
In response to michaelbryan6998:
Dailyeffort noted, there are a lot of messages posted on this site regarding receiving Pluvicto. I want to address your 4 concerns you listed as 1, 2 3 and 4.
1 &2) We're talking radiation here, not a virus, dust, etc. Any surface will be impacted with the radiation. The radiation is in your system and diminishes with the half-life of the Lu177 (Pluvicto guidelines are 3 day for extended time near people, a week to be mostly out of your system). The radiation leaves the body mostly in excreted liquids, i.e. sweat, saliva, and especially urine. Sitting on a blanket is good, but choose furniture isolated from others for 3 days or more. Store and wash exposed clothing (and the blanket after the 3 day period) after each use, separately, with an extra rinse.
3) Eating easily digested foods will help. I never became more than slightly nauseated with a headache, and my go-to was watered down chicken noodle soup and bland mash potatoes. Odd, but it worked for me during chemo and Pluvicto.
4) You must have read my comment about riding in a car with a freshly treated Pluvicto patient. Tied into my comment 1-2 above, the moisture leaving the body through exhaling is carrying some radiation. Thus, the more fresh air (and air not passing by other people), the better. I drive a separate car from anyone else for at least 3 days.
I tell myself to step back, look at the big picture, take a breath and use every day common sense. Do read Norvartis Pharmaceutical's literature on their Pluvicto. I hope this helps and does not muddy the water for you. I'm not a doctor, but I am the repeat (two rounds x 6 treatments) Pluvicto patient so, I've had a lot of experience. Stay positive...
I'm scheduled for Pluvicto treatment 1 on 21 March. My wife and I have been searching for 'real' information - practical answers to real questions. appreciate any help:
1. What do patients do to sit on fabric furniture? (tarp, blanket, nothing??)
2. Wipe surfaces down with ??? Lysol? Simple Green? commercial cleaners?
3. Thoughts on food - any recommendations - positive or negative
4. Interesting post on the car air conditioner being on outside, not recirculating. Don't home HVAC units recirculate inside air?
5. Any hair loss?
thanks. Believing for the best, and believing His report.
I missed your concerns on item 5. No, no hair loss from Pluvicto, unlike chemotherapy. Pluvicto targets only each individual prostate cancer cell throughout the body. Chemo attacks rapidly replicating cells, which includes cancer, hair, finger & toe nails. As listed in Pluvicto literature, the PSMA 617 portion of this treatment often hits your saliva glades (there are 3). I still have some "spit", although my mouth is a little dryer than it use to be. Don't worry about it, a minor price to pay for living longer.
In response to michaelbryan6998:
Dailyeffort noted, there are a lot of messages posted on this site regarding receiving Pluvicto. I want to address your 4 concerns you listed as 1, 2 3 and 4.
1 &2) We're talking radiation here, not a virus, dust, etc. Any surface will be impacted with the radiation. The radiation is in your system and diminishes with the half-life of the Lu177 (Pluvicto guidelines are 3 day for extended time near people, a week to be mostly out of your system). The radiation leaves the body mostly in excreted liquids, i.e. sweat, saliva, and especially urine. Sitting on a blanket is good, but choose furniture isolated from others for 3 days or more. Store and wash exposed clothing (and the blanket after the 3 day period) after each use, separately, with an extra rinse.
3) Eating easily digested foods will help. I never became more than slightly nauseated with a headache, and my go-to was watered down chicken noodle soup and bland mash potatoes. Odd, but it worked for me during chemo and Pluvicto.
4) You must have read my comment about riding in a car with a freshly treated Pluvicto patient. Tied into my comment 1-2 above, the moisture leaving the body through exhaling is carrying some radiation. Thus, the more fresh air (and air not passing by other people), the better. I drive a separate car from anyone else for at least 3 days.
I tell myself to step back, look at the big picture, take a breath and use every day common sense. Do read Norvartis Pharmaceutical's literature on their Pluvicto. I hope this helps and does not muddy the water for you. I'm not a doctor, but I am the repeat (two rounds x 6 treatments) Pluvicto patient so, I've had a lot of experience. Stay positive...
thanks and blessings. Yes, I"m a reader and maybe my unrealistic expectation would be that 'they' would provide a 'do this, don't do that' information sheet with more details than are provided. Again, my expectation. Would it be beneficial to wear gloves? radiation is gone from towels/bedding/chair covers after washing ......
Anyway, thanks for taking the time and energy to respond. I have a good support system, strong wife and family, good church, etc.
I missed your concerns on item 5. No, no hair loss from Pluvicto, unlike chemotherapy. Pluvicto targets only each individual prostate cancer cell throughout the body. Chemo attacks rapidly replicating cells, which includes cancer, hair, finger & toe nails. As listed in Pluvicto literature, the PSMA 617 portion of this treatment often hits your saliva glades (there are 3). I still have some "spit", although my mouth is a little dryer than it use to be. Don't worry about it, a minor price to pay for living longer.
I missed your concerns on item 5. No, no hair loss from Pluvicto, unlike chemotherapy. Pluvicto targets only each individual prostate cancer cell throughout the body. Chemo attacks rapidly replicating cells, which includes cancer, hair, finger & toe nails. As listed in Pluvicto literature, the PSMA 617 portion of this treatment often hits your saliva glades (there are 3). I still have some "spit", although my mouth is a little dryer than it use to be. Don't worry about it, a minor price to pay for living longer.
Xylimelts for dry mouth as well Biotene stepping it down to small carry on spray bottles
OraCoat, XyliMelts® Dry Mouth, Mild-Mint, 40 Melts
Biotene Dry Mouth Moisturizing Mouthwash Fresh Mint, 1L
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I'm scheduled for Pluvicto treatment 1 on 21 March. My wife and I have been searching for 'real' information - practical answers to real questions. appreciate any help:
1. What do patients do to sit on fabric furniture? (tarp, blanket, nothing??)
2. Wipe surfaces down with ??? Lysol? Simple Green? commercial cleaners?
3. Thoughts on food - any recommendations - positive or negative
4. Interesting post on the car air conditioner being on outside, not recirculating. Don't home HVAC units recirculate inside air?
5. Any hair loss?
thanks. Believing for the best, and believing His report.
Hi Michael,
You might have already done so, but try using the Search icon at the top of page to locate current Pluvicto discussions. There are a number of different threads with posts by men who have been on it. Once on a thread, feel free to click reply to posts that are of interest and write a post with your questions.
I wish you both all of the best in your upcoming treatment. I hope you will continue to post as you move ahead so we can all learn from your experience.
Bill
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Helpful -
Hug
1 Reactionthank you
In response to michaelbryan6998:
Dailyeffort noted, there are a lot of messages posted on this site regarding receiving Pluvicto. I want to address your 4 concerns you listed as 1, 2 3 and 4.
1 &2) We're talking radiation here, not a virus, dust, etc. Any surface will be impacted with the radiation. The radiation is in your system and diminishes with the half-life of the Lu177 (Pluvicto guidelines are 3 day for extended time near people, a week to be mostly out of your system). The radiation leaves the body mostly in excreted liquids, i.e. sweat, saliva, and especially urine. Sitting on a blanket is good, but choose furniture isolated from others for 3 days or more. Store and wash exposed clothing (and the blanket after the 3 day period) after each use, separately, with an extra rinse.
3) Eating easily digested foods will help. I never became more than slightly nauseated with a headache, and my go-to was watered down chicken noodle soup and bland mash potatoes. Odd, but it worked for me during chemo and Pluvicto.
4) You must have read my comment about riding in a car with a freshly treated Pluvicto patient. Tied into my comment 1-2 above, the moisture leaving the body through exhaling is carrying some radiation. Thus, the more fresh air (and air not passing by other people), the better. I drive a separate car from anyone else for at least 3 days.
I tell myself to step back, look at the big picture, take a breath and use every day common sense. Do read Norvartis Pharmaceutical's literature on their Pluvicto. I hope this helps and does not muddy the water for you. I'm not a doctor, but I am the repeat (two rounds x 6 treatments) Pluvicto patient so, I've had a lot of experience. Stay positive...
-
Like -
Helpful -
Hug
2 ReactionsI missed your concerns on item 5. No, no hair loss from Pluvicto, unlike chemotherapy. Pluvicto targets only each individual prostate cancer cell throughout the body. Chemo attacks rapidly replicating cells, which includes cancer, hair, finger & toe nails. As listed in Pluvicto literature, the PSMA 617 portion of this treatment often hits your saliva glades (there are 3). I still have some "spit", although my mouth is a little dryer than it use to be. Don't worry about it, a minor price to pay for living longer.
-
Like -
Helpful -
Hug
1 Reactionthanks and blessings. Yes, I"m a reader and maybe my unrealistic expectation would be that 'they' would provide a 'do this, don't do that' information sheet with more details than are provided. Again, my expectation. Would it be beneficial to wear gloves? radiation is gone from towels/bedding/chair covers after washing ......
Anyway, thanks for taking the time and energy to respond. I have a good support system, strong wife and family, good church, etc.
Blesssings,
Michael
thank you.
Obviously dry mouth is a minor annoyance to live longer.........Understand the Pluvicto literature.
Michael
Buy tablets Xylimelts for dry mouth as well Biotein steppin it down to small carry on spray bottles
https://ca.iherb.com/pr/oracoat-xylimelts-dry-mouth-mild-mint-40-melts/112319
Xylimelts for dry mouth as well Biotene stepping it down to small carry on spray bottles
OraCoat, XyliMelts® Dry Mouth, Mild-Mint, 40 Melts
Biotene Dry Mouth Moisturizing Mouthwash Fresh Mint, 1L
Many thanks. Ordered from Amazon. Have dry mouth now from ADT. Blessings