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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Mar 4 4:02pm | Replies (178)
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@mrducks

I was diagnosed with cutaneous T-cell Lymphoma in November 2024 and now undergoing treatment with Valchlor and clobetasol. Just wanted to know if anyone else is using this drug and how are they dealing with the constant itching.

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Replies to "I was diagnosed with cutaneous T-cell Lymphoma in November 2024 and now undergoing treatment with Valchlor..."
Lori, Volunteer Mentor | @loribmt | 6 days ago

Hi @mrducks. Welcome to Connect. Let’s get you over to the right support group where you’ll be able to connect with other members who also have Cutaneous T Cell Lymphoma

This would be a great place to start:
Anyone have Cutaneous T Cell Lymphoma?
https://connect.mayoclinic.org/discussion/cutaneous-t-cell-lymphoma/
You’ll meet @dodgegirl2, @58skywagon @shari715 and many others who share their experiences with CTCL including treatments and advice…along with encouragement. Hopefully they have some suggestions for your itching!
Has the treatment with Valchlor and Clobetasol helped with your CTCL?

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