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Papillary thyroid cancer with lymph node involvement

Thyroid Cancer | Last Active: Mar 21 9:35am | Replies (38)
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@hrscott01

Hi! I am 18, though I was diagnosed when I was 16. Post surgery, it came back that 20/49 lymph nodes were cancerous as well as microfoci across my entire thyroid. I had RAI and am now under TSH suppression. I am still seen every 6 months and am considered "indeterminate" and "under surveillance", but so far nothing new has been caught! I hope this gives some hope that your daughter as well can find some peace. I have the RET-fusion gene as well as Extra-thyroidal extension, but luckily my RAI was effective and my scans have been mostly clear since then.

Do you have any updates on your daughter?

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Replies to "Hi! I am 18, though I was diagnosed when I was 16. Post surgery, it came..."
Colleen Young, Connect Director | @colleenyoung | Mar 17 8:41pm

Hi @hrscott01, I'm tagging @camdynsmom so that she sees your question about how her daughter is doing.

@hrscott01, you may also wish to talk part in the forum for adolescents and young adults with cancer here:
- Adolescent & Young Adult (AYA) Cancer Support Group https://connect.mayoclinic.org/group/adolescent-young-adult-aya-cancer/

The group also meets monthly on Zoom:
- Young Adult Cancer Support Group Meeting: Y.A. Me Too https://connect.mayoclinic.org/event/aya-adolescents-and-young-adults-support-group-meeting-y-a-me-too-1-84eda13a/

Great news to hear that your scans have been mostly clear. Did you have to miss school during treatment? How are you doing with TSH suppression treatment?

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