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Actrema advice

Polymyalgia Rheumatica (PMR) | Last Active: Mar 25 11:37am | Replies (25)

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@verversannjudy

Rheumatologist put me on Actemra in 2024 to help wean off prednisone (steriod) faster. I was able to wean down 1 mg. every 2 weeks instead of every 4 weeks. I had been on prednisone for a year or so.....not good. Actemra (not a steriod) infusion takes about one hour. I feel nothing during, and have very few if any side effects. I've been on the infusion (once a month) since December, 2024. I may have to have the infusions once a month for 12 months - maybe longer. Everyone is different. If I come off the infusion in July (12th month) and have a relapse with PMR, Rheumatologist says we start over - could be harder to get PMR to go into remission.....so we want to make sure I take it long enough. Judy in Colorado 81 yrs. old. I found that PMR and/or prednisone has compromised my joints and muscles!!!

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Replies to "Rheumatologist put me on Actemra in 2024 to help wean off prednisone (steriod) faster. I was..."

Could you be more specific about how muscles and joints were compromised by prednisone. I ask this questions since I have been on and off prednisone for 35 years due to PMR. I am currently taking Kevzara and reducing my prednisone.