Stem Cell Transplant Decision & Success

Posted by jeffhampton @jeffhampton, Dec 31, 2024

I am having a challenging time deciding whether to move forward with a stem cell transplant. I have AML with INV 16 and was diagnosed on November 18, 2023. Initially, I went through Induction Chemo followed by 4 rounds of Consolidation Chemo then I relapsed in Sept. 2024.

My challenge is getting straight answers from my oncologist about the risks, the chance of success, how long I may be down, etc., based on their experience with a 57-year-old male. The answers I receive are very vague. I would also appreciate guidance from someone who has been through an STC transplant. This too has been difficult. I left out that my donor is one of my daughters (half-match).

I would greatly appreciate sharing anyone's experience and input. I am very confused and the past 13 months have been a roller coaster. I would really like to get off this roller coaster.

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

katgob | @katgob | Mar 4 9:50am

I was happy to see Lori post, as I wanted to see how all is going! I started my testing mid-March last year, all the preps and tests and paperwork necessary to be done before the transplant. Early April i started the preconditioning chemo. Your sisters gift gives me the chills. I was a platelet donor for 25 years, and once i got platelets in 2021 from the effect of chemo on my body, I felt the gratitude others got when getting my platelets.
I wish I knew my donor. Give your sister an extra hug for those of us who had anonymous donors.
Above all else read the posts other people wrote above again and again. WISDOM through real life experience.

jbforet | @jbforet | Mar 5 1:32pm

Went through all classes . Getting chemo now . Side effects have been minimal.
Transplant 3/11

my44 | @my44 | Mar 6 6:07am

In reply to @jbforet "Went through all classes . Getting chemo now . Side effects have been minimal. Transplant 3/11" + (show)

Hi, @jbforet.
Wishing you all the best on your transplant next week. 🙏💕

Lori, Volunteer Mentor | @loribmt | Mar 6 10:21am

In reply to @jbforet "Went through all classes . Getting chemo now . Side effects have been minimal. Transplant 3/11" + (show)

Wishing you safe travels along this journey to your 2nd chance at life! Your new re-birth day will be March 11.
While there may be some challenging days ahead, the other side of transplant brings hope for a long and healthy future!
I’ll be thinking of you next week! I’m here, along with all the other BMT posse members if you have any questions for us.
Stay strong, stay positive! You’ve got this!

Lori, Volunteer Mentor | @loribmt | Mar 14 6:16pm

In reply to @jbforet "Went through all classes . Getting chemo now . Side effects have been minimal. Transplant 3/11" + (show)

Hi @jbforet. Thinking about you today…Day +3 after your BMT. How are you feeling?

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