Scleroderma cardiac involvement Myocarditis

Posted by smvan @smvan, Feb 24 7:51am

My name is Susan
Diagnosed with Scleroderma 25 yrs ago.
Has affected GI
Have also had genetic ASD repair Mitral Valve Repair 40 and 20 yrs ago.
Heart Failure diagnosed and treating 8 yrs. Dual Chamber Pacemaker, CardioMEMs for daily PA pressure.
2 months ago MRI heart shows changes of Cardiomyopathy, with possible Myocarditis, Intraventricular synchrony. Treating with most recently with Immunosuppressants.
Has anyone been diagnosed, treated with and improvement with this condition.

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svillalobos4 | @svillalobos4 | Mar 6 9:20am

Hello Susan,
I have been diagnosed in February with Scleroderma. I’ve been anxious, depressed, and curious. Seeing your post and experiences gives me hope. They too will be checking for gastroenterology needs. Thank you for sharing and good luck to you.

Colleen Young, Connect Director | @colleenyoung | Mar 11 1:02pm

In reply to @svillalobos4 "Hello Susan, I have been diagnosed in February with Scleroderma. I’ve been anxious, depressed, and curious...." + (show)

@svillalobos4, I'm tagging @smvan to make sure that Susan sees your post. Additionally I'd like to bring @gila into this discussion.

You may also be interested in these related discussions:
- Scleroderma (Systemic Sclerosis): Anyone else?https://connect.mayoclinic.org/discussion/sclerodermasystemic-sclerosis/
- Scleroderma Gut Health https://connect.mayoclinic.org/discussion/scleroderma-gut-health/

I understand how a new diagnosis can make one curious, but also anxious. It sounds like you are managing the worry by gathering information and connecting with others. How are you doing today?

svillalobos4 | @svillalobos4 | Mar 11 3:08pm

In reply to @colleenyoung "@svillalobos4, I'm tagging @smvan to make sure that Susan sees your post. Additionally I'd like to..." + (show)

Yes, thank you.

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