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Living with MDS (Myelodyplastic Syndromes)

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (109)
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@helentickle

I was diagnosed 2022. Haemoglobin 102in 2024 my haemoglobin was 82 very tired. Had a transfusion 1 unit. Every 6 weeks. In November I started having 2 units every 8 weeks. This week I went on Lenalidomide. Hoping to have less transfusions.

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Replies to "I was diagnosed 2022. Haemoglobin 102in 2024 my haemoglobin was 82 very tired. Had a transfusion..."
Lori, Volunteer Mentor | @loribmt | 2 days ago

Welcome @helentickle. MDS can impact the production of healthy blood cells. In your case it looks like your body isn’t able to keep up with a steady amount of red blood cells causing anemia. Red blood cells carry oxygen throughout the body so when your numbers dip below normal, it leaves you feeling pretty fatigued! Especially when they get under 10, it gets pretty noticeable the lower the number.
Hopefully the Lenalidomide (Revlimid) helps to get your MDS under control so you won’t need as many transfusions. Were you diagnosed with MDS associated with chromosome 5q31 deletion?

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