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Septal Myectomy Consideration

Hypertrophic Cardiomyopathy (HCM) | Last Active: Apr 12 7:42am | Replies (39)

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@brumasterj

You have some time to process all this!
Listen to your body, stay hydrated is a big one.
Yes will happen in Rochester for surgery.
Have they told you the thickness of your septal wall?
Mine is 18mm normal is 10mm
Like my mayo dr said there are alot of facilities that say they can do this surgery, do not believe them!
There are only a handfull of drs that can! His words not mine:)
In 2022 i went to the emergencybroom after not being able to complete a easy 3 mile walk! Something was wrong i couldnt catch my breath
After running test and EKG
My resting gradient was 22mmHg they did not dona stress test at that time, had they done thebstress they would have saw i had exercise induced LVOTO
The released me and said i had mild cardiovascular disease and put me on carvedelol, this has a beta blocker with diaretic
Diarectic are now bueno for HCM patients!
My mayo dr said carvedelol exasperated my symptoms!
I had been telling my local cardiologist that it made my symtoms worse while exercising and he said i needed it to help dialate my blood vessels!
It sounds like your getting great care where ykur at
But a second opinion is always good to have!

Oh by the way they had me wear monitor for 30 days and it never gave them any data that indicated i had heart issues!
Thats because they (my local hospital) was uninformed about HCM

Oh and yiu said your not very symptomatic 50mmHg resting is considered severe
Again i would seek another opinion!
Not sure where your located bit reach out to mayo
Your here for a reason:)

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Replies to "You have some time to process all this! Listen to your body, stay hydrated is a..."

I have been taking carvedilol for a couple years now. Had the appt with the NP and she knows I am on it, only heart med I am on, and she was not concerned. I trust my cardiologist in AR with my life. He is the one sending me to the Mayo Clinic for Septal Myomectomy. He is on a Cardiac Board and took my case to them for recommendations. I feel he would not have e on it if he thought it would exasperate my condition. I know each case is different. But I sure hope it has not set me back.. Sharon