Hi Joni, I live in Auckland and was diagnosed in 2016. I went through the same protocol. I am doing well. Managed to VERY SLOWLY get off prednisone and am now on low dose methotrexate. I have two numb legs from the knees down to the toes and a numb left hand. Not ideal but better than my Dad who died at 61 of the EGPA as they had no options to treat other than prednisone which didnt work well for him. We are lucky we have the 'Gold Standard' - Cyclophosphamide with high dose prednisone. Please contact me if you need any support Cheers, Leonie
@leoniesnorton Welcome to Mayo Clinic Connect! We’re glad that you found this site. And you’ve given such a positive report on your autoimmune disease! I certainly hope that you’ll stick around and continue to help others!
I am fortunate 3 shots of Nucala kept me under control (over last year). We recently switched to Fasenra (1 injection per month) which seems to be keeping me under control. It was recently approved for EGPA. I believe it will be given 1 per month unlike the dosage for other asthma subtypes, but check with your doctor.
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@leoniesnorton Welcome to Mayo Clinic Connect! We’re glad that you found this site. And you’ve given such a positive report on your autoimmune disease! I certainly hope that you’ll stick around and continue to help others!
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1 ReactionI am fortunate 3 shots of Nucala kept me under control (over last year). We recently switched to Fasenra (1 injection per month) which seems to be keeping me under control. It was recently approved for EGPA. I believe it will be given 1 per month unlike the dosage for other asthma subtypes, but check with your doctor.