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Waldenstroms Macroglobulemia

Blood Cancers & Disorders | Last Active: Apr 30 11:00am | Replies (22)
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@mrgreentea

Hi, you seemed to be well prepared! I'd be happy to take other things if there is any encouraging evidence. (I started drinking green tea a long time ago to ween myself off pop.)

My numbers in Nov24 were
IgG 317
IgM 2220
IgA 27

In Feb24 they were
IgG 431
IgM 2320
IgA 18

My M-protein MK in Nov24 was 1.372. It was 1.33 in Apr24. My M-protein Isotype is negative (abnormal). I don't know anything about this indicator... looks like I need to learn more. Thanks for pointing this out.

I believe that my doc would not consider supporting IgIV until I start having frequent infections.

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Replies to "Hi, you seemed to be well prepared! I'd be happy to take other things if there..."
dcuste | @dcuste | Mar 5 9:53pm

Thanks for providing your test data. I figured you had a good reason for having your handle. Unfortunately, I'm still drinking soda.
I was thinking that all MGUS cases were similar, now I'm realizing there is probably no point in even looking at fighting off SMM or MM and figure WM is more likely were I'm heading. I currently don't have any symptoms, but did find a bone lesion and AVN (bone head damage) on a recent pelvis MRI. They then had me consult with a bone surgeon. She pretty much told me call her back when I'm in unbearable groin pain and she'll do a hip replacement. Hang in there.

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catartist | @catartist | Apr 30 9:49am

I did have frequent infections- and my monthly I V for 1:30 years has made me Sosi much better generally. I can tell when I need another! Subtle- I wish we’d known about my need years ago. Feel many things would have been better with my various co- mobilitiies!(78)

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