Has anyone been using Tymlos?

@daisylou
Oh my! Thank you for that reminder about Forteo! I just had to switch from Tymlos to generic Forteo (insurance). I had been injecting Tymlos at night, so when I received my Forteo, I resumed my former regimen. I’ve only had it for a few days—I’ll skip tonight and start doing it in the morning! Need all the benefit I can get!!! Thanks again for your reminder/info!

Hi
The medicine is only good for 30 days so if you didn’t take the entire 8 clicks did u discard the rest after 30 days?
The Tymolos people say you can’t do a lesser dose but I have difficulty with meds and want to do less of a dosage.
Please respond.

@fili123,
You can take any amount of clicks on the pen you want. I have all my unused
Tymlos pens in my refrigerator. I am taking Forteo now, because my endo
thought that a whole dose of Forteo was better than a half dose of Tymlos.
If I don't see any improvement on my next REMS test, I will probably go
back to a half dose of Tymlos. If you decide to take a partial dose, make
sure that you keep the pen in the refrigerator. I think it lasts 30 days
out of the refrigerator. Once I tried to get 2 months out of one pen. I
think that the medicine does get weaker with time, because I got the side
effects back with the next pen. It probably lasts about 45 days taking a
half dose when kept refrigerated. I had to keep getting new pens
every month even though I didn't need them, because my Tymlos was only
approved for 2 years.

I’m on the first pen, but my plan is to follow the instructions and start using the new one on day 31, and discard the old one. I have already received the new one

Thank you.

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Thanks

Hi,
I was on Tymlos for 21 months. My decision to choose Tymlos was not an easy one. However, my doctor told me I had two choices, bad and worse! The bad choice was to take the shots and risk short and/or long term side effects. However, it would lengthen my lifetime. The worse choice was not to take Tymlos and die from a fall! At the time, I was 72 and felt I had a lot more life left in me. Initially, after a bad reaction, I had to stop taking Tymlos for three months. Then, the next three months, I eased into taking the shots every other day to make sure there wasn't any further side effects. For the next 18 months, my husband gave me the shots in a specific area of the abdomen required by Tymlos. That was difficult because the shot could not enter a scar and my stomach was badly scared from a breach pregnancy/birth and two surgeries. Although it was not an easy 21 months, due to new side effects, I finished taking the shots earlier than recommended. I have been on Prolea (two shots every six months, at the hospital) for six years. My score dropped from -4.8 to 2.3. The first year, Tymlos sent me a pen every month at no charge. Then, they refused to continue the treatment for the second year. Thankfully, through Wake Baptist Medical Center, I was able to pick up a sample pen once a month until my treatment was completed. At this time, I have no further side effects. I do hope that this continues for the rest of my life. Given all the complications, would I do it again? In a heartbeat! I hope this information helps you and others who have this challenging decision to make. God bless you and I wish you the best!