@jutebox42 & @hopeful33250
You asked about my Neuroendocrine Cancer diagnosis - dx October 2021 biopsy in Endoscopy. Well differentiate, K 1%; Grade 1; Stage 4 (metastases to liver) primary Small intestine. Found Medical Oncologist in my small town and Started Somatuline Depot shots per month for 1 yr. Been on Lanreotide 120mg shot per 28 days ever since. April 2023 MRI showed progression of tumor growth. I went to City of Hope in Duarte, CA where NET specialist recommended treatments and further Gallium PET scan (not available near home). After much consideration I choose PRRT 4 infusion treatment offered there. From June thru December I received treatment with minimal side effects.
I am happy to report that my January 2025 MRI revealed significant tumor reduction, some tumors were no longer visable on scan, and few tumors remained stable. No further growth or metastases evident. I choose to receive MRI scans every 3 months to be vigilant regarding tumors.
I am regaining strength and happy and grateful for my treatment. I am receiving exceptional care and guidance from my NET Specialist at CoHope but continue to receive my Lanreotide treatment from my local Medical Oncologist.
I am open to answer any further questions that you have. I wish you best outcome on your cancer journey. Mayo Connect offers great support and an avenue to learn info on medications, treatments, health problems and side effects from Volunteers and fellow cancer patients. Never feeling alone in our situation is so helpful too!