Thank you for following up. I started last Thursday. I do an infusion at home 3x a day - 6 AM, 2 PM, 9:30 PM. This is to last 3 weeks to treat Pseudomonas. The company supplying "Option Care" sends the required medication and supplies weekly. They sent a nurse to train me. An at home nursing agency is coming once a week to take blood and do the dressing change. They are available 24 hours for questions and emergencies.
So far the only side effect is looser stools. The first few days I felt much better, but the last 2 days, I have been tired. I think that is due to getting up in the very early morning hours to take my other antibiotics for MAC, then go back to bed until 6 AM, but not getting uninterrupted sleep.
Is the infusion helping? Not sure I can only say I have less sputum and it has a little less yellow stuff in it. I was hoping all the yellow would be gone by now. Overall, other than the timing of the infusions, it's not as bad as I thought.
I did my first shower today, right before the nurse came to change the dressing, just in case I got it wet. The hospital who put in the PICC line gave me this plastic arm glove to cover the whole arm while showering. I used the handheld shower head holding it in the arm with the plastic glove, to wet and rinse myself, thought this would lessen the chance I would get the arm wet. l went very well. I did not get the dressing wet.
I'm happy to hear it's going smoothly! So far I've been able to avoid this type of treatment. Thanks for the update!