Hi Lori! Thank you so much for reaching out. In November, I had surgery for a small bowel obstruction. Ever since then, my platelets have been high with mild anemia. The problem did not seem to be resolving, so my internist referred me to a hematologist. She did a series of test including bone marrow abnormalities. Everything was negative.
I had breast cancer 17 years ago, and I had a hematologist at that time who I loved. I went back to see him; he agreed the platelets were abnormally high, and we needed to do something. The first hematologist my internist referred me to wanted me to have a bone marrow biopsy done.
My original hematologist did not seem to think the biopsy was necessary. He started me on hydrea. Meanwhile, I had an ER visit last week, which had me admitted to the hospital. Turns out I had inflammation of my adrenal glands. They wanted me to have a hematology consult while there, so I did. I really liked that hematologist, and she is closer to where I live. It appears I have reactive or essential thrombocytosis. Of course, having had breast cancer in the past, I am going to the worst possible scenario with my thoughts. However, I agree with you that knowledge is power and I want to know what’s wrong so I can go forward. The sitting around and waiting and not knowing is definitely worse.