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Sjogren's Question

Autoimmune Diseases | Last Active: Mar 10 9:14pm | Replies (28)
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@j77

Thankyou! I am so sorry you and your daughter are going through this.I feel like I am on the show Mystery Diagnosis just going from Doctor to Doctor with no answers.It is awful. I hope in time I or the Doctors can figure it out.I would just like for something really definite to show up in my Bloodwork at this point.

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Replies to "Thankyou! I am so sorry you and your daughter are going through this.I feel like I..."
Becky, Volunteer Mentor | @becsbuddy | Mar 6 9:10pm

@j77. You will probably have luck if you call one of these:
NORD. National Organization of Rare Diseases. https://rarediseases.org/

GARD Genetic and Rare Diseases. https://rarediseases.info.nih.gov/
Both organizations maintain a list of doctors who specialize in autoimmune disease. You may have to drive somewhere, but. . . . . .
Good Luck!!

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