← Return to Stage IIIB Mantle Cell lymphoma with skin involvement just diagnosed

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@nhlbob

I'm currently in remission after two rounds of low dose radiation. I have since adopted a strict Mediterranean diet & drink 30 ounces of freshly pressed juice daily (celery, cucumber, green apple, parsley, ginger, lemon). I've also eliminated all sugar and fried foods from my diet.

The IVIG treatments were not helpful for my MCL or neuropathy.

What has your medical team suggested for your situation?

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Replies to "I'm currently in remission after two rounds of low dose radiation. I have since adopted a..."

Glad to see you back here! You’ve certainly been covering the gamut of treatments since we first began chatting a couple years ago. Sending positive thoughts that the latest rounds of radiation will finally do the trick!

Your diet is similar to mine except I haven’t added juicing yet! Been toying with the idea. This may be the incentive I need to get me started. The impact on the body with eliminating sugar and fried foods is a game changer, isn’t it? I cut both from my life several years ago and if I have a momentary lapse in judgment, I can tell immediately and end up paying for those thrills! 😅 What brand of juicer do you have?

Thanks for asking, I’m actually doing well. I’m coming up on my 6 year anniversary with a bone marrow transplant for AML. That has been the gift of life.

I’ve been reading a few articles about patients with MCL who are benefitting from autologous stem cell transplants, using their own stem cells. It also appears that there are clinical trials being conducted for the possible use of CAR-T therapy for MCL patients! So there may be more potentially longterm treatments on the horizon! Has your oncologist mentioned an autologous stem cell transplant?