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@lact

It is just very frustrating! I am very early into this, about two weeks after finding out I can’t get an actual diagnosis, it came
as a complete shock. I went into each appt for biopsy expecting to have orSchedule a procedure and actually have a diagnosis, certainly not be in limbo. I have not had time to learn to live with my lack of diagnosis yet.

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Replies to "It is just very frustrating! I am very early into this, about two weeks after finding..."

@lact Oh, I can really relate to wanting a diagnosis immediately! As @loribmt said, it can take a series of testing to determine what is going on. Let me relate a personal story. I have Systemic Lupus, officially diagnosed in 1988. But it took over 6 months to make that diagnosis. They did initial testing, then based on results another test was ordered, and so on. It was frustrating, and scary. All I knew were my symptoms, and I was at the mercy of the medical team to figure out what was going on. They were careful to not lead me on, and to explain everything, for which I am so grateful. But as you know, it did nothing to ease my mind, and as I was working full time plus, the head games playing in my mind made me feel so off balance!

Our minds often want to run to worst case scenarios. It might be a way of being ready to hear the final word, but it does nothing to ease our comfort in the meantime, right!? All I can say is to distract yourself, do something that you will find peace and joy in. Leave the hard testing and diagnosing to your trusted medical team, and then when they tell you their thoughts, you'll deal with it gracefully.
Can you try this?
Ginger