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Camzyos side effect of itchiness?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Mar 26 8:27pm | Replies (17)

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@susanml

I’ve been itching like mad after taking camzyos at night. Makes me crazy and I thought it was winter itch. The dispensing pharmacist said that in the camzyos monograph, itching may be a side effect. Now I know I’m not the only one!

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Replies to "I’ve been itching like mad after taking camzyos at night. Makes me crazy and I thought..."

is there any strategy that your doctor recommends for the itching? I've been itching like mad too. I saw my dermatologist for something else yesterday and he said I could take allegra or zyrtec literally every day for years to stop the itching. And I'm seeing the allergist tomorrow. I'm afraid of not taking the Camzyos for a few days to see if the itching stops. Afraid for two reasons: getting HOCM symptoms back (and finding out that I might just have to have open heart surgery), and also all of the rules the Bristol Myers Squibb has, including that every month you are taking Camzyos, they won't ship it to you for the next month until you have 7 or less pills left. Crazy. But the itching may be better than having someone shave my heart walls. I don't know.