Connect
← Return to Does anyone else have MGUS?
Discussion
Blood Cancers & Disorders | Last Active: 6 days ago | Replies (1051)
Comment receiving replies
@karencan2025 Yes, waiting to see what the cancer center has to say can be very anxiety provoking! But as you have said, until things are figured out there's no sense in getting to upset. Our minds sometimes want to go right to the worst case scenario. But I'll bet that no matter what the outcome is, you got this. There is a lot of information available not only here, listening to members' stories, but also sites like the International Myeloma Foundation myeloma.org
I will be most curious what everything points to after all the testing, and I hope you will come back and let us know.
Ginger
Replies to "@karencan2025 Yes, waiting to see what the cancer center has to say can be very anxiety..."
Connect
We have an update, although more diagnostic have to be run to fully confirm things, followed by a treatment plan. I guess there are different sorts of monoclonoal proteins, and I know so little about them. But according to the hematologist, the ones he has indicated non-Hodgkin's lymphoma. It's a very rare variant called Waldenstrom's macroglobulinema (4-6 per million people are diagnosed with it.) There appears to be some link between this disease and myeloma but I hope that won't be the case. So I guess we go from here, and I can just hope that treatment will be successful. Thanks again for the support.