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Hi Ginger,
That support is really helpful; thanks so much. He just had more CT scans and blood tests so the next step will be to meet with the cancer centre as they deal with the next steps. That doesn't mean he has been told it's myeloma, just that the specialists at the cancer centre will take over from his family doctor. We shall see. He has quite a lot of medical knowledge due to his profession but this is a new one. I am hoping it is MGUS, which would be a much more favourable outcome. It's the anemia that throws me as my understanding is that is not as common with MGUS.
I really appreciate being allowed into this community. Thank you so much.
Replies to "Hi Ginger, That support is really helpful; thanks so much. He just had more CT scans..."
If it helps to know: I was diagnosed with MGUS last week and I presented with anemia as well as other symptoms. So anemia can be a stand alone and not an indicator of MM. Hope that helps.
Keep us updated, I’m interested in what you find out.
All the best,
Amber
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@karencan2025 Yes, waiting to see what the cancer center has to say can be very anxiety provoking! But as you have said, until things are figured out there's no sense in getting to upset. Our minds sometimes want to go right to the worst case scenario. But I'll bet that no matter what the outcome is, you got this. There is a lot of information available not only here, listening to members' stories, but also sites like the International Myeloma Foundation myeloma.org
I will be most curious what everything points to after all the testing, and I hope you will come back and let us know.
Ginger