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Information Sojgren's Syndrome

Posted by penn @penn, 3 days ago

I have Sojgren's Syndrome and Small Fiber Neuropathy.
My question, I understand S.F.N about the pain and where it goes but Sojgren's understand the dry areas but how does it affect the body???
I have so much pain everyday!!! HELP

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Mentor
John, Volunteer Mentor | @johnbishop | 3 days ago

Hi @penn, I'm sorry you are having to deal so much pain everyday. I'm not sure if you have seen the Sjogren's Foundation but they have a lot of information that you may want to look at to see if it might provide some suggestions to help manage the symptoms.

-- Resources: https://sjogrens.org/understanding-sjogrens/resources
-- Treatment: https://sjogrens.org/understanding-sjogrens/treatment

There are also quite a few other discussions on Sjogren's and Neuropathy including the one you started below.
-- Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-sojgrens-hashimotos/

Here's a link to the list of discussions and comments from members on Sjogren's and neuropathy - https://connect.mayoclinic.org/search/discussions/?search=sjogren%27s%20and%20neuropathy.

REPLY
1 reply
penn | @penn | 3 days ago
In reply to @johnbishop "Hi @penn, I'm sorry you are having to deal so much pain everyday. I'm not sure..." + (show)
@johnbishop

Hi @penn, I'm sorry you are having to deal so much pain everyday. I'm not sure if you have seen the Sjogren's Foundation but they have a lot of information that you may want to look at to see if it might provide some suggestions to help manage the symptoms.

-- Resources: https://sjogrens.org/understanding-sjogrens/resources
-- Treatment: https://sjogrens.org/understanding-sjogrens/treatment

There are also quite a few other discussions on Sjogren's and Neuropathy including the one you started below.
-- Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-sojgrens-hashimotos/

Here's a link to the list of discussions and comments from members on Sjogren's and neuropathy - https://connect.mayoclinic.org/search/discussions/?search=sjogren%27s%20and%20neuropathy.

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Thank You Again JOHN, I APPRECIATE ALL YOUR HELP!!!

REPLY
j77 | @j77 | 8 hours ago

I think I might be in your same boat, but I can't even get a diagnosis of Sjogren's yet. I have had a few positive ANA's with a high low speckled pattern of 1.80
I did have a slightly abnormal EMG which showed the possibility of Autoimmune, Small Fiber Neuropathy and several other diseases. Of Course the Neurologists don't look into anything so I have been doing so much research on my own. Do you have trouble walking and a weak torso especially pelvis and Diaphram? I also have weak hands, fingers, wrists, ankles, toes and feet. I have pain everywhere and inflamed big upper arms and legs and extreme lower back pain. I also have the extremely dry eyes, mouth, sinuses, skin, hair and trouble swallowing. Do you happen to have NeuroSjogrens? I think this was possibility brought on by covid for me. I also am insulin resistant now, but not diabetes. So I guess a metabolic disease is involved too. I was an athlete before all of this came on. I have had thyroid disease for a long time with no major issues.

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