Response to @sdmarnaof2 - It has been more than 4 years (December 2020) since the initial onset. I still have the symptoms especially the burning sensation and the ache on the left side of my face and mouth burning. However, they have not gotten worse (keeping my fingers crossed). In fact, I've weaned off of the gabapentin doses and stopped taking duloxetine. I still have my good days and bad days but the symptoms have improved overall. What have I been doing differently? For me, any kind of movement activities (walking, exercising, just being out and about) really help. I always have an ice pack near by for the burning on my face which is the most frequent symptom for me. I also try to eat healthier although I have tried various diets (no sugar, no gluten, no caffeine, no dairy, you name it!) but have not noticed much improvement from the diets. But I do feel better in general from eating less and eating healthier.
I asked a top neurologist in NYC whether if this will get worse over time. She said not necessarily, it could remain stable (I'm praying she is right). You are young (I'm not at 55!), please don't despair. Stressing about the progression will make it worse. Try to find the underlying cause if you haven't had all testing done. Keep your spirits up! My thoughts are with you.