I was diagnosed with MDS with ring sideblasts in December 2024. I was on the mend from a very painful PMR condition in April 2024. Anemia and fatigue symptoms, along with the PMR upper body pain. Placed on prednisone, and then biologic (actemra) infusions. I tapered off of the prednisone successfully, and have not had PMR pains since the infusions began in July 2024. But my anemia has continued, with low hemoglobin (11.3 to 12.0) and RBC (35-36) counts. My oncologist ordered a bone marrow biopsy, and she found the MDS. I’m thankful she was persistent.

So we are now on a 3 month schedule for follow up visits, and if my hemoglobin drops to 10 she will recommend treatment. But meanwhile my fatigue is significant and affects my daily activities. Has anyone had success in improving their fatigue levels while living in the “wait and watch” phase of this disease?