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DiscussionMyeloma: how long after treatment were you able to go back to work?
Blood Cancers & Disorders | Last Active: Mar 14 8:38am | Replies (9)Comment receiving replies
Replies to "Treatments once a week: Darzales/Velcade quick injections to stomach. Dexamethasone x5 day after treatment. Revlimid 25mg..."
@treehouse5437 I have been on Revlimid + dexamethasone pretty consistently since Aug 2021. I am also an end stage kidney disease patient, on dialysis since Sept 2022. No, it is not related to the multiple myeloma. I took a break of about 3 months when my dialysis and myeloma treatment combined was overwhelming my body/mental health, then started back up again. Originally my Revlimid was 5mg, now I do 2.5 mg. Originally the dexamethasone was 20 mg, now it is 12 mg.
In October/November 2024 we added Ninlaro to my regimen 3 weeks on at once a week, then one week off. As for dialysis, in July 2024 I switched from using a dextrose-based solution to maltose-based solution. For my particular situation, my oncologist and nephrologist [kidney Dr] are in close communication. They both agree this is a marathon, not a sprint, and have purposely not been super aggressive in the myeloma treatments in order to give me the best quality of life possible. I cannot have a kidney transplant, nor am I able to do a stem cell transplant.
So, I am a dialysis patient for life, and on a myeloma treatment plan for life. Grateful to have a caring/knowledgeable medical team. Being kind to myself, accepting "it is what it is", advocating to make it the best way I can.
Ginger