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Cerebral Small Vessel Disease - How are you coping?
Stroke & Cerebrovascular Diseases | Last Active: 9 hours ago | Replies (184)Comment receiving replies
Hello I am a 45-year-old female that has just been diagnosed with hereditary cerebral small vessel disease. I had an MRI and it was confirmed through that. Along with my other symptoms of neuropathy, Raynaud's disease, cognitive decline, muscle loss and function, and gait issues. Is there anybody that's dealing with this or anyone that has any kind of information any kind of support groups that could help how common is this Is there a foundation for this. What kind of information is out there related to this condition. I really would appreciate anyone's advice and support and I look forward to hearing from anyone.
Replies to "Hello I am a 45-year-old female that has just been diagnosed with hereditary cerebral small vessel..."
I too have been diagnosed with CSVD and would love to get more information and discussion regarding the disease and symptoms. I was diagnosed August 2024 at moderate level. Since then I have been miserable with brain fog, balance headaches and so very fatigued. About all I do well is sleep. I’d be interested to know what symptoms others are experiencing, at what levels, and anything more about CSVD. THANKS, Debbie
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I also have CSVD. It is disconcerting. I just finished a month of vestibular therapy which seems to have had a positive effect, and do daily exercises that were prescribed as well. I would recommend this to help with balance/gait issues. I also previously did cognitive therapy to get help when I had my severe CAD diagnoses, and this might be beneficial also.
I think that this is more common than people realize, but am not aware of any support groups.
Good luck!