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Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Blood Cancers & Disorders | Last Active: Mar 23 2:30pm | Replies (358)
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@tiger1

I experienced rigor with my first infusion of retuxin….we tried again one month later and I had horrible adrenal back pain….I am now on 4 pills of Brukinsa a day, no more retuxin…have to say though my spleen did go down a bit with the little retuxin that I did get…good luck!

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Replies to "I experienced rigor with my first infusion of retuxin….we tried again one month later and I..."
audreyzm | @audreyzm | Mar 23 2:30pm

Yes, I experienced rigors woke me up in the middle of the night. Horrible experience. It only happened after my first treatment. My oncologist at the time didn't have much to say about it. I am sorry to hear you are not getting the results you hoped for. I went through 8 treatments of rutiximab and it is got clear pet. However I was still in constant pain. Totally dismissed by oncologist. Found rare cancer doctor suggested removal of spleen. Removed in 2023, spleen had ruptured within the spleen and was stuck to my diaphragm. I am glad it is gone. Hang in there, be an advocate for your health.

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