← Return to Myectomy Needed

Discussion

Myectomy Needed

Hypertrophic Cardiomyopathy (HCM) | Last Active: Mar 30 6:47pm | Replies (29)

Comment receiving replies
@brumasterj

Thanks for asking!
I suffered two back to back heart failures in oct and nov
The first one our local hospital diagnosed me with pleurisy and pneumonia, the second one they said i had heart failure with LVOTO.
I then went to the mayo clinic and they said i had been mis diagnosed for years and had had several exercise induced heart failures.
Since being on camzyos yes im doing more mileage on my mountain bike than i have in years but im still dealing with a heart murmor when i hit harder hills or strenuous fast movements.
Thats because i still have the obstruction.
Im 56 and very active and feel that i want to eliminate the obstruction with surgery so i can get back to my life style!
This has stopped me from running and strenuous activities.
If i was 70 and slowing down i would probably consider staying on camzyos.
The other reason im not staying on camzyos is because the protocol to stay on it!
Monthly trips to phoenix which is 7.5 hours away 1 way.
So the trips to phoenix are time consuming and expensive.

Jump to this post


Replies to "Thanks for asking! I suffered two back to back heart failures in oct and nov The..."

I am 71 and not slowing down 🙂

Hi. What is your gradient on Camzyos? Also, how thick is your septum? I’m at 19mm septum and my gradient with Valsava is 44. Some say it’s just not high enough for intervention but I remain symptomatic. I want to pursue ASA as a next step.