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DiscussionHemoptysis - wonder what others do
MAC & Bronchiectasis | Last Active: Mar 3 12:25pm | Replies (68)Comment receiving replies
Replies to "I have hemoptysis at least once a month and today I had it when I first..."
Have you tried taking a good Vitamin K2 supplement? I take K2 MK-4 every day. It is good for bleeding disorders and might help. I am pretty sure it has helped my episodes to stop or be very rare. You also need to take Vitamin D3 as they work together. But do not take them at the same time of the day. Both need to be taken with a fatty meal. Also anything you can do to keep inflammation down will help make those episodes less often. But again, your hemoptysis pattern is very typical with BE. A couple of TBLS followed by blood tinged sputum for another few days. It always clears up and resolves. It is an expected result of having BE and according to my pulmo (who specializes in BE, MAC and CF) nothing to worry about. Only if the blood is a large amount. That is very rare. As Sue advices your fear of it may be helped by a counselor.
Here is what I did when I had an ongoing fear with one of my health conditions - first I talked to my very compassionate primary provider, who told me I needed to calm down, accept that this was going to be with me for the rest of my life, figure out how I wanted to manage it, and get on with my life. Then she referred my to a counselor for a few sessions to build coping mechanisms.
Now whenever I fall into that worry pattern, I dust of the exercises I learned and use them.
Maybe you can talk to your pulmonologist to get their take on managing an episode. They should be able to tell you when to put it aside, when to contact them and when, if it ever is out of control, to go to the ER. Then, if that doesn't take away the worry, do what I did and talk to a counselor who can teach you how to live with the episodes.
Have you watched this very informative video on hemoptysis?
Here are a few members who have posted about hemoptysis, maybe they have additional tips for you - @irenea8 @reneemc @happy2023