Hashimoto's Disease

sondrachristol, interesting. Thanks.

suerte, I'm diagnosed with Hasimoto's through high TPO antibodies. I have no symptoms and my thyroid panel is close enough to normal that I'm considered subclinical.
Many physician get the replacement dosages incorrect. best to see an endocrinologist or rheumatologist.

Hi, im hypo caused from a pituitary tumor. My levels when elevated slightly I get terrible systems. My Endocrinologist tests monthly because I need it. She absolutely doesn’t agree but I don’t care. I have severe colonic motility disorder and take a lot of medication to be able to go to the bathroom and if my level goes up slightly it effect my bowels severely.
I’m 70, eat the same foods because of my colon issues and walk and I’m gaining weight weekly. I don’t get it. She said it’s my thyroid and holding on to stool for so long but I’m not buying it. The most she did with my tsh is the typical free t4 and an 8am cortisol which is fine.
My tsh needs to be at the low end of normal always or my constipation is so severe. They never do an antibody test. Sometimes I think as you get older they lose interest. The weight gain is new. I’m on Tirosint because I’m so allergic to fillers and thyroid meds are loaded with them. Any thoughts on weight gain. Thank you

I was diagnosed with hypothyroidism in 2008 due to high tsh levels. In 2015, a new Endo clarified it as being Hashimotos due to a certain blood test. I would have to go through my records to see exactly what the test was. Have had to had thyroid fna done, and they keep a close eye on my thyroid for inflammation and nodule.

I also have MCTD, Fibro, Sjrogren's, Raynauds, Pulmonary Sarcoidosis, Osteopenia, and Osteoarthritis.

I'd want another opinion. As you know the medications can be difficult to get right. An associate suddenly lost weight, had more energy and seemed happier She decided to change endocrinologists. He'd adjusted her thyroid medications.
Interestingly, low end thyroxine is usually the cause of slow motility in the intestine. You've had to pay close attention and figure it out yourself.

Hi @dlydailyhope
I became sick with EBV in my early 30’s, however, I tested positive for the antibodies that showed it was not the first time I had been sick with the virus.
I do remember being sick with what I thought was the flu in my early 20’s, but I guess it wasn’t bad enough to get checked out
When I got sick in my 30’s however, I was bedridden for 6 months. I had a daughter that was only 4 at the time, so it was rough going.
Never been sick like that again and I’m 65 now.
But of course my immune system can get riled up easily and causes me all sorts of issues,
Multiple autoimmune conditions and I am very sensitive to almost all drugs, even over the counter cold medicines. I think it’s all related to the EBV.
My goal is to avoid flare ups the best I can. It’s a day to day thing.

I do. My last tsh was elevated so I was taking med 6 days weekly she said go to 7. Labs due March 12.
Let’s say at my lab a normal tsh is 1 to 5 just using numbers and anything over 5 makes my hypo symptoms severe. But, even if around 3 I have issues. I need to be at 1 to relieve symptoms and at least help my bowels. I’ve had colon issues caused by anesthesia. Does this make sense to follow? It’s this sudden weight gain I can’t understand and it will not come off.

You probably already know that with anesthesia induced constipation most over the counter products including fiber are ineffective or counterproductive. You'd want a prokinetic medication.
TSH is highest from 11am to 5am when you can't get labs. But it is lowest in the late afternoon. Fasting can make a difference.
I'd suspect that if the weight gain from thyroid disease remains, there is a better level of replacement for you.

Prokinetic meds didn’t work. I’m waiting for the next new drug to hit the market. Latest one was RBSrela.
I get my blood drawn at 8:30 am and have for 7 years unless something unexpected arises,I’m retired.
When she raises the dose to the next level with-in a week I feel like I have afib. It’s not worth it. I have 22 confirmed drug allergies. I have read every medical paper published I can find. I’m done. Just thought I’d throw out the weight issue cause it was new. Thank you for your advise.

It sounds like you have Hashimoto’s. Ask your endocrinologist to test your TPO Antibodies next time you have your blood drawn, along with TSH, T3-free, T4–free. Also, a book on Hashimoto’s by Isabella Wentz, M.D. is worth the read. I read her book and pretty much healed myself with eliminating certain foods like gluten, dairy and soy. You will be amazed! I also suffer from hypothyroidism and take 75 mcg of Synthroid. I too was gaining weight by the day and was doing the Weight Watchers Weight Loss Program…I knew something wasn’t right.