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Anyone have experience with HHT or Osler-Weber Rendu?

Blood Cancers & Disorders | Last Active: 5 days ago | Replies (30)
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@pendutchgal

The only treatment offered me currently is medication called oceretide for arms. They say this will relieve the bleeding and the need for iron infusions.

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Replies to "The only treatment offered me currently is medication called oceretide for arms. They say this will..."
pendutchgal | @pendutchgal | 5 days ago

Spell check gets me . For AVMs Doctors are offering subcutaneous treatment octreotide. A synthetic hormone to manage the bleeding. Waiting for insurance approval.

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