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Anyone have experience with HHT or Osler-Weber Rendu?
Blood Cancers & Disorders | Last Active: Jan 8 10:01am | Replies (37)Comment receiving replies
The only treatment offered me currently is medication called oceretide for arms. They say this will relieve the bleeding and the need for iron infusions.
Replies to "The only treatment offered me currently is medication called oceretide for arms. They say this will..."
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Spell check gets me . For AVMs Doctors are offering subcutaneous treatment octreotide. A synthetic hormone to manage the bleeding. Waiting for insurance approval.