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Waldenstroms Macroglobulemia

Blood Cancers & Disorders | Last Active: Apr 30 11:00am | Replies (22)
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@ranchgal4sure

Hi Lori,
Many thanks for your welcoming message 🙂
I'll definitely check out the links including international site for WM.
My first symptoms were fairly sporadic and mild (dyspnea and presyncope). Yet, I was concerned so asked my PCP to order bloodwork. After the idiopathic anemia diagnosis I was referred to a Hemotologist Oncologist who ordered numerous tests - including bone marrow biopsy which confirmed WM.
I'll look forward to following others and sharing as my journey continues 🏞

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Replies to "Hi Lori, Many thanks for your welcoming message 🙂 I'll definitely check out the links including..."
zeedee1 | @zeedee1 | Apr 30 11:00am

Waldenstroms for goin on two years Imbruvica and prednisone with rituxin stripped working. Bad numbers up good ones down and now severe anemia. Added 10 dexamothosone pills once a week that keep me up for days and I g infusions and concerning
Rituxin and added brukinsa. Doc thinks I have had this much before diagnosis. Due to many unexplained health issue inculdimg thyroid cancer many years again. Anything souls familiar? Am I I. For worse side effects? Is it worth it? I do have faith I. My doctor and I know he is optimistic

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