Connect
← Return to Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Discussion
Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: 2 days ago | Replies (355)Comment receiving replies
Thank you for welcoming me. Smzl is so rare it's hard to find others with the same diagnosis. Yes, very crazy story regarding my spleen I kept telling my then oncologist something was stuck. I often thought about sending him a message but figured since I was seeing another oncologist in the same group he got a mouth full of feedback. Since then I moved onto a new group. If a doctor doesn't listen to me I find one that will. I know my body and very well and I advocate, research and if I feel something is wrong I voice it.
The radiation was made me exhausted. Thank you for the encouragement and advise on how to easy the symtoms. My body has been through a lot. Rutiximab treatment, spleen removal and radiation. Great to connect with you. I appreciate it.
Replies to "Thank you for welcoming me. Smzl is so rare it's hard to find others with the..."
Connect
I’ve experienced the frustration of having a dismissive doctor too. It’s an incredibly discouraging situation not to be heard. So I’m happy that you were able to get the help you needed!
Now you’re in full recovery mode! From experience with cancer treatments it just takes time to heal — mentally and physically. It’s a challenge to be patient when you’re just bursting to get back to normalcy. ☺️ But there’s no rushing this step…it’s slow and steady for the win. So, for the time being, you get a free pass to veg out. Your body will tell you when you’ve overdone!
Walking is a great way to build stamina by slowly adding a few more steps, blocks, miles, daily. Keeps the blood moving, endorphins flowing and heart pumping!
I did a quick search for references to SMZL. Here’s the link on Connect for these discussions if you’re interested. https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=Smzl#discussion-listview
Don’t hesitate to pop into any conversation! Let me know if I can help you with anything else, ok?