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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: May 23 3:53pm | Replies (366)Comment receiving replies
@audreyzm While you’re waiting for other members to reply about a 2nd diagnosis for MZL, I wanted to welcome you to Mayo Connect. I’m sorry you’ve had a double whammy with this disease after having such a positive response with the Rituximab for the first diagnosis.
But what a crazy story with your spleen! Kudos for pushing to get answers for that unexplained severe pain. You know your body better than anyone else and it was telling you something was definitely not right! I have to know, did you ever report the findings to the doctor who was so dismissive about your pain?
I hope you recover quickly from your radiation treatments. The fatigue should slowly disappear within a couple weeks. Rest often, eat healthy proteins, fresh fruits and veggies high in antioxidants and drink plenty of water daily…aiming for at least 64 ounces. Was the radiation localized?
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Thank you for welcoming me. Smzl is so rare it's hard to find others with the same diagnosis. Yes, very crazy story regarding my spleen I kept telling my then oncologist something was stuck. I often thought about sending him a message but figured since I was seeing another oncologist in the same group he got a mouth full of feedback. Since then I moved onto a new group. If a doctor doesn't listen to me I find one that will. I know my body and very well and I advocate, research and if I feel something is wrong I voice it.
The radiation was made me exhausted. Thank you for the encouragement and advise on how to easy the symtoms. My body has been through a lot. Rutiximab treatment, spleen removal and radiation. Great to connect with you. I appreciate it.