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Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Parkinson's Disease | Last Active: 3 days ago | Replies (12)
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@loribmt

Hi @rhodysmom! I see you’ve been a member for a couple of years but this is your first time posting, so let me officially welcome you to Connect!

I do know of one member, @jrwilli1, who had MDS and Parkinson’s. He did have a bone marrow transplant so no longer has the MDS. His lovely wife has been a devoted caregiver and is active in the forum so hopefully she’ll be able to answer any questions you might have.

Were you or a loved on recently diagnosied with one or both of these diseases?

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Replies to "Hi @rhodysmom! I see you’ve been a member for a couple of years but this is..."
rhodysmom | @rhodysmom | Mar 1 8:02pm

Lori,
Thanks for responding.
I was diagnosed with Parkinson's in 2011.
My platelets have dropped from 225 in 2018 to 47 currently. I was diagnosed with MDS in March of 2024 following a bone marrow biopsy. It is being watched and it has not been treated. I am not a candidate for bone marrow transplant as I have too many co-morbidities.
I was wondering whether PD and MDS can coexist without major consequences. If there are any special considerations?
Appreciate feedback and advice. Thanks
Barbara

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