Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Posted by krishh @krishh, Jul 15, 2017

I'm on my fourth line of treatment. What treatments are others receiving for this? Thanks ~

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@carmita

For the love of God have faith . I have bile duct stage 4,I'm in my 2nd year and one month doing grate,stable with tibsovo cancer pills.
If you don't mind
I would be praying for you.
Many blessings for healing.

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Did you have surgery, or did you go directly to Tibsovo. Any metastases?

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@elizabettagrace

Dan,

My husband has the same diagnosis as you - but just recently. How are you doing? Did you have surgery? Chemo? Join any clinical trials? Ar you at Mayo Scottsdale? Elizabetta

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Dear Elizabetta -- I was diagnosed in January 2024 with distal cholangiocarcinoma. Treatments included 10 biweekly chemo infusions followed by 28 daily (Monday-Friday) radiation complemented with oral chemo at the University of Arizona Cancer Center in Tucson with radical bile duct resection and reattachment surgery by Dr. Mark Truty and his team at Mayo Rochester in October 2024. A Whipple Procedure was a possibility but not necessary. The pathology report showed "no residual carcinoma."

Dan

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@angelziggy

Afternoon, My husband and I just found out that he has Cholangio carcinoma. He was jaundice, losing weight, fatigue so we went to the er. He has had the CT scan and MRI already. mass in liver that went into the bile duct. tomorrow is the biopsy and if they can they will place a stent in. trying to find information anything

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@angelziggy, how did the biopsy and the stent placement go? How is your husband doing? And YOU?

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