Newly diagnosed with liver cancer, having trouble coping

Posted by joemina @joemina, Oct 27, 2024

Just diagnosed with liver cancer 4 days ago. Looks to be an early diagnosis. Still my anxiety and thoughts are all over the place. Any help or advice will be appreciated. Are there zoom or online cancer support groups. Joe

Interested in more discussions like this? Go to the Liver Cancer Support Group.

williamdaddono | @williamdaddono | Feb 21 9:39am

In reply to @phillydawg "Great news. I had a 3.5 cm tumor treated with Y90 November 2023 and they killed..." + (show)

Wow! Thats encouraging. Last year they discovered a 12.5cm tumor on my liver. They did a resection and removed it. Now a have a new 2cm tumor. I have completed the mapping and will be getting the radiation this monday. Hoping to get an exception to get listed . I was told their is very little side effects but your telling me about extreme fatigue. How long did it last??

hener | @hener | Feb 28 2:43pm

Liver cancer very small tumour waiting to have cyber knife treatment in a few weeks, worried but positive

Colleen Young, Connect Director | @colleenyoung | Mar 2 7:38pm

In reply to @ttwoodell "My boyfriend is in the last stages of HCC. Your stress and worry, we know all..." + (show)

@ttwoodell, welcome. How is your boyfriend doing? Is he currently on treatment? How are YOU doing?

Colleen Young, Connect Director | @colleenyoung | Mar 2 7:55pm

In reply to @kbower1611 "Thank you! Biopsy came back they took 3 samples it's adenocarcinoma same kind that was in..." + (show)

@kbower1611, you can find discussions about histotripsy here:
https://connect.mayoclinic.org/search/discussions/?search=Histotripsy
How are you doing on chemo?

kbower1611 | @kbower1611 | Mar 3 8:22am

In reply to @colleenyoung "@kbower1611, you can find discussions about histotripsy here: https://connect.mayoclinic.org/search/discussions/?search=Histotripsy How are you doing on chemo?" + (show)

Hi, Colleen I am doing find with the chemo. Had to get a unit of red blood cells because mine were down. I have a CT scan scheduled for March 12th and we will see if this chemo regiment is working. I have all ready did the 5fu regiment and also had 28 treatments of proton radiation while taking a chemo pill. Had the Whipple surgery in October of 2024 which I was stage 1 at that point and time. The surgeon said he got it all out he also took out 21 lymph nodes and 4 were cancerous. He wasn't to worried about that because when I was open the gave me radiation. But when I went for my 3 month check up the CT scan showed it went to my liver. I have 5 tumors biggest one is 2.6 cm one is 2cm and the other 3 are 1cm. So hoping that this chemo is keeping them at bay or even shrinking them. They have put me on the list for clinical trial but I am really interested in the Histotripsy .But I understand that there are only 2 treatment machines in the United States. I know I go to Boston and they are talking about get one but don't know how far out or how long it will take to get one. Thank you for asking won't know anything until that CT scan but I do feel great. Best that I have felt since this all started in December of 2023. If you find any more new treatments out there please let us all know. Would like to know if anyone has had the Histotripsy treatment and how they are doing and has it worked. Thanks again! Everyone one stay positive and keep on fighting. Hopefully sooner than later they will find something to fight pancreas cancer and it seems to be that in likes to spread to the liver.

stevie17 | @stevie17 | Mar 3 11:58am

In reply to @kbower1611 "Hi, Colleen I am doing find with the chemo. Had to get a unit of red..." + (show)

Histotripsy has a site on FB you see actual patients comments. There are many more than 2 machines in the US.

kbower1611 | @kbower1611 | Mar 3 1:45pm

In reply to @stevie17 "Histotripsy has a site on FB you see actual patients comments. There are many more than..." + (show)

Thank you for that information. Because what I have read it was just approved in December of 2023 and at this point in time there were only 2 machines in the US. I will have to look more into to it Thanks

kbower1611 | @kbower1611 | Mar 3 1:47pm

In reply to @kbower1611 "Thank you for that information. Because what I have read it was just approved in December..." + (show)

Plus I don't do Facebook. But Thanks again

Colleen Young, Connect Director | @colleenyoung | Mar 3 8:33pm

In reply to @trishac "I’m sorry you’re dealing with this once again. Wishing you the best." + (show)

@trishac, welcome. Have you been diagnosed with living cancer?

trishac | @trishac | Mar 3 9:34pm

In reply to @colleenyoung "@trishac, welcome. Have you been diagnosed with living cancer?" + (show)

Had MRI yesterday and results came back today: Radiologist commented on the report that it doesn’t look like the lesion is cancerous after all. But recommendation is to follow up in 6-12 months to make sure it doesn’t grow.

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