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DiscussionHow long before side effects from Hydrea start?
Blood Cancers & Disorders | Last Active: 3 days ago | Replies (63)Comment receiving replies
Replies to "@arecchie I was on 4,000 mg for about 5 days but once I got blood work..."
Yep. Hair loss is an issue. I have thick hair, and I can see how much my hair has thinned. My head circumference is about 24", which is an inch larger than the largest wigs out there, so I am concerned because once you lose your hair on Hydrea, it will never grow back as long as you have to be on the drug, and in my case, that's the rest of my life. It is demoralizing and not vain at all! it's the reality of the drug. I am 73, so I figure if I lose it all, at least I lived a long life with a full head of hair, but I feel for those who are much younger and going through this.
My doctor says that it's rare to lose all of your hair on this drug, but there are people who have lost it all. If it keeps falling out like it has over the last 6 months, I don't know what I will look like by next October. I wonder if anyone reading this thread can tell us if the hair loss bottoms out after a while and you are just left with much thinner hair?