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@adellanno

@arecchie I was on 4,000 mg for about 5 days but once I got blood work done again, my Platelets and WBC dropped, they took me off of all medication. I received a platelet transfusion this past weekend. Currently my levels are normal, and my doctor and I are discussing the future treatment plan. My doctor expects my platelet levels to rise again. I am concerned with all medication having the side effect of hair loss, I know that is vain, but I have been dealing with this diagnosis pretty well until now when my hair is falling out.

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Replies to "@arecchie I was on 4,000 mg for about 5 days but once I got blood work..."

Yep. Hair loss is an issue. I have thick hair, and I can see how much my hair has thinned. My head circumference is about 24", which is an inch larger than the largest wigs out there, so I am concerned because once you lose your hair on Hydrea, it will never grow back as long as you have to be on the drug, and in my case, that's the rest of my life. It is demoralizing and not vain at all! it's the reality of the drug. I am 73, so I figure if I lose it all, at least I lived a long life with a full head of hair, but I feel for those who are much younger and going through this.

My doctor says that it's rare to lose all of your hair on this drug, but there are people who have lost it all. If it keeps falling out like it has over the last 6 months, I don't know what I will look like by next October. I wonder if anyone reading this thread can tell us if the hair loss bottoms out after a while and you are just left with much thinner hair?