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What's your experience with Orgovyx (relugolix)?
Prostate Cancer | Last Active: Mar 21 8:18am | Replies (236)Comment receiving replies
I'm gleason 9, no mets. I've been on Orgovyx just over a month. If I'm exhausted, can't sleep , can't fine the word or have any of the multiple symptoms that I used to blame on my age (75) I wonder, "is it the orgovyx?", definitely lost libido, which use to be strong. I have always been active. My radiation oncologist has banned bike riding, and I have had to cut back on how much I can do, but physical activity helps. Moffit Cancer and the local Y have a pickleball for cancer survivors program called "project rally" 🙂
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Yup, sounds about right….add all that to a raging appetite and a craving for sweets which I never had.
I was on it for 6 months, exercised, worked in the yard, no weight gain, etc….but this first month off of it has been the worst! Age 70 - No energy, extreme fatigue and can’t push thru it to work out like I did before; even gained a few pounds - less than 5 but still….
So I am hoping it’s some sort if cumulative effect that’s finally hitting me now and will soon reverse as my T rises. Hang in there mccann, gettin old ain’t for sissies and ADT is no picnic!😩