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Blood Cancers & Disorders | Last Active: 1 day ago | Replies (1017)
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Ginger, I’m a little confused if MGUS is benign why would we research on myeloma site for information I was diagnosed in November and I’m in the “wait and see” . You’re right , I hate it. Going in April for new CT and bloodwork. I eat very healthy. I exercise by walking every day and drink a gallon of water. I don’t know what else I can do. Maybe supplements I heard curcumin could help but I’m not sure who to ask about that. I keep trying to focus on the fact that it’s a one percent per year so I am 99% to the good. Next year I’ll be 98%. That’s the way I see it, but it doesn’t stop my mind from wandering.Kleo
Replies to "Ginger, I’m a little confused if MGUS is benign why would we research on myeloma site..."
Google: "Does Curcumin slow the progression of MUGUS."
Harty
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@4kleo Here is a link to the page that speaks about MGUS, from myeloma.org: https://www.myeloma.org/what-are-mgus-smm-mm
As you can see, there is a lot of information there for everyone to digest. I will tell you my story, that I was diagnosed in 2017 with MGUS, that morphed to smoldering myeloma in 2018, and upgraded to multiple myeloma in 2019. My specialists will be the first to tell you that is highly unusual, and we joke that I am an "overachiever". I also live with an ultra rare kidney disease, fewer than 50 people in the world have been diagnosed with it.
MGUS is often found when our medical team may be looking at another different health concern.
Yes, our minds wander a lot. We get to become aware of how to quiet the niggling thoughts, the apprehension, the "what ifs" that come along with the wait-and-see approach to the MGUS condition. Remember, the vast majority of people do not progress beyond MGUS.
Ginger