Sharp electric pain in right top side teeth and gum?

Posted by sarah314 @sarah314, 3 days ago

I was diagnosed with trigeminal neuralgia and just had a mri with and without contrast, it didn't show a compression I'm at a loss and the pain is unbearable! Last night from 3pm to 11pm I had almost constant shocks. Anyone have helpful tip? Did oxcarbazepine take away your shocks? Any information helps at this point

Interested in more discussions like this? Go to the Neuropathy Support Group.

DAMN, I was having random electrical shocks all over my body, but never in my mouth. Mine was caused by a ruptured disc(C5-C6) in my neck. I had spinal fusion surgery to fix it, but they came back a couple of years later, although not as severe.
I ended up having a second surgery(C6-T1) and it's now a rare occurrence. Did they do an MRI of your neck?

REPLY

@sarah314
What types of specialists are you working with (ENT, dentist, neurologist)? How was your trigeminal neuralgia diagnosed? Was your MRI of your head only (did you get a MRI of your cervical spine)? Did you have a recent viral infection? Certain viruses can live forever in your nervous system and it may be good to get testing for viruses like EBV, shingles, herpes, Covid, etc.). If there is a viral cause to triggers of your Trigeminal neuralgia, you could be prescribed valacyclovir or a similar antiviral medication to manage symptoms and reduce activation of dormant viruses.

1. https://www.mayoclinic.org/diseases-conditions/trigeminal-neuralgia/diagnosis-treatment/drc-20353347

2. https://my.clevelandclinic.org/health/diseases/15671-trigeminal-neuralgia-tn

3. https://www.ccjm.org/content/90/6/355

REPLY

@sarah314 I agree that the pain you have in your mouth and jaw may be related to your neck. I have Thoracic Outlet Syndrome (TOS) which makes my neck tight along with having had a whiplash long ago and having had cervical spine surgery 8 years ago. The muscular problems from these conditions do affect the alignment of my jaw (like TMJ) and when one side is tight, I will get pain in my mouth, jaw or teeth. I think a physical therapist may be able to help you if you are having issues with muscular alignment.

REPLY

Carbamazepine (Tegretol) at first ot made the shocks bearable and shorter after some time they completely stopped. Trigeminal Neuralgia was absolutely the worst pain ever!

REPLY
@mrmacabre

DAMN, I was having random electrical shocks all over my body, but never in my mouth. Mine was caused by a ruptured disc(C5-C6) in my neck. I had spinal fusion surgery to fix it, but they came back a couple of years later, although not as severe.
I ended up having a second surgery(C6-T1) and it's now a rare occurrence. Did they do an MRI of your neck?

Jump to this post

No MRI of neck just my brain.

REPLY
@dlydailyhope

@sarah314
What types of specialists are you working with (ENT, dentist, neurologist)? How was your trigeminal neuralgia diagnosed? Was your MRI of your head only (did you get a MRI of your cervical spine)? Did you have a recent viral infection? Certain viruses can live forever in your nervous system and it may be good to get testing for viruses like EBV, shingles, herpes, Covid, etc.). If there is a viral cause to triggers of your Trigeminal neuralgia, you could be prescribed valacyclovir or a similar antiviral medication to manage symptoms and reduce activation of dormant viruses.

1. https://www.mayoclinic.org/diseases-conditions/trigeminal-neuralgia/diagnosis-treatment/drc-20353347

2. https://my.clevelandclinic.org/health/diseases/15671-trigeminal-neuralgia-tn

3. https://www.ccjm.org/content/90/6/355

Jump to this post

No and thank you I didn't receive any test about viruses. I seen a neurologist at University of Michigan she just done the mri of the right trigeminal nerve. I should have gave a in depth of what went on. In November I had about 4 or 5 episodes that would last up to 4 hours of these electrical shocks I changed eating habits put in supplements started wearing a mouthguard and they stopped from December 2nd till January 14th. December 1st i went to u of m e.r. and they diagnosed me along with a dentist i found weeks before. The U of M prescribed me 2 weeks of carbamazepine, i didn't take them because i didn't want to start and not have more. January 14th I finally got a primary doctor she told me to start it because I was to see my neurologist January 20th. Shocks came back January 15th and I ended up stopping the medication on Jan 27th noticed a rash starting. Then had no shocks till February 24th and that's when they were from 3pm till 11pm and I started taking oxcarbazepine at 5pm that night since then no shocks once again. I had the mri February 20th of the right trigeminal nerve and the shocks come in 2 teeth on my upper right side. Nothing was seen so I don't know and I was in pretty good health besides what felt like a gum infection right before this.

REPLY
@jenniferhunter

@sarah314 I agree that the pain you have in your mouth and jaw may be related to your neck. I have Thoracic Outlet Syndrome (TOS) which makes my neck tight along with having had a whiplash long ago and having had cervical spine surgery 8 years ago. The muscular problems from these conditions do affect the alignment of my jaw (like TMJ) and when one side is tight, I will get pain in my mouth, jaw or teeth. I think a physical therapist may be able to help you if you are having issues with muscular alignment.

Jump to this post

Were you getting the shock?

REPLY
@sarah314

Were you getting the shock?

Jump to this post

@sarah314 I did not get an electric shock type pain in my jaw. I do know what that feels like because I did experience those types of pain before my spine surgery. A shock represents nerve compression that is more severe.

REPLY

Sarah. My trigeminal neuralgia started 2 years ago,about a month after having 2 upper rt cracked molars crowned. I am 81 and had been playing sax every day for a few hours. Severe pain in my rt jaw for seconds would stop abruptly upon getting out of bed each morning only if I had been sleeping on rt side. Sometimes during the day. 3 dentists found all upper teeth ok. Then I was getting severe gum pain above those teeth,mainly the rt canine. Dr.diagnosef TN and put me on cabamazepine. All pain stopped. Great. But I did not like ATACIA, that drunken feeling walking. Also after 3 months, liver is damaged badly. A friend gave me a packet of cayenne pepper. I down 1/2 teaspoon in water first thing. Sprinkle it in drinks and on all food all day long .. Pain gone. Am waiting to see a neurologist. Hopefully he will order sn MRI. Right now the incisor is bite sensitive.
. Good luck

REPLY
@shari1965

Carbamazepine (Tegretol) at first ot made the shocks bearable and shorter after some time they completely stopped. Trigeminal Neuralgia was absolutely the worst pain ever!

Jump to this post

Shari , I still have Took myself off tegretol because of ATAXIA. Now on plenty of nil side effects CAYENNE PEPPER. Are you still on TEGRETOL. It damages the liver after a few months. Hepatitis things. Good luck. James 82, NZ

REPLY
Please sign in or register to post a reply.