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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 23 hours ago | Replies (919)

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@chuckeg

Thanks for the opportunity to tell my story as early as it is.... I was diagnosed with Leiomyosarcoma last month after a detailed biopsy came in from the Mayo clinic. My provider in Denver requested further analysis from Mayo. The result was LMS that is 7.5cm X 5cm X 7.2 cm in the pelvis area. The iliopsoas muscles are involved. My suggested treatment (from a radiation oncologist and confirmed with my surgeon) includes 25 sessions over 5 weeks of radiation first, followed by surgery, and potentially more radiation. The hope is to shrink the mass enough to get a margin that the surgeon wants. I'm hoping the mass reduction will relieve my little pain and larger numbness in my left leg. I've fallen several times since Jan. 1, resulting in a cane use followed by a 4-wheel walker. My weakness in my left leg continues and may require me to be wheelchair bound until I get some relief. I've been examined by these docs along the way the past 6 weeks: PCP, oncologist, radiation oncologist, neurosurgeon, and finally a surgeon (had a hernia repair by him a year ago and I was happy with him). My first treatment is Mar. 6. I'll try to update my progress here.

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Replies to "Thanks for the opportunity to tell my story as early as it is.... I was diagnosed..."

Hi @chuckeg, I appreciate the details. So you've started treatment now. Was your first appointment last week the radiation simulation appointment? Have you started daily radiation now? How is it going?