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Stubborn partner

Caregivers | Last Active: 7 hours ago | Replies (31)

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@calycu

So sorry to hear you lost your husband. Sounds like it was his time, and he accepted that. I'm glad for both of you that it was quick . I can imagine that you feel a combination of sadness, grief and relief all at once .... and probably feel guilty for that.... but don't!

In my case, I think I've been grieving for 15 years... initially, I was ecstatic when his first lung cancer treatment had very good results, but the effects of that and the other impacts of COPD have just stripped him of all the things he ... and we ... loved to do. So I grieved the loss of the life we had. Unfortunately, he hasn't really tried to replace those things with others, and hasn't done as much as he could to improve his quality of life (in particular, he refused to exercise, which apparently is the one thing COPD patients can do to keep themselves viable).

We recently talked about how the end would happen for him ... not knowing what to expect is tough. We both fear he will suffer.

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Replies to "So sorry to hear you lost your husband. Sounds like it was his time, and he..."

Thank you. If your husband ever reaches the point where the doctor says that he has 6 months or less to live, call in Hospice. They came twice a week for about 4 weeks before they decided that he should go to the Good Samaritan house-which is part of hospice. At first he said he was not going but when I asked him to please try it for 3 days because I needed a break, he said OK, I will go because you need a break. But my husband was beginning to get really confused, he could not walk and kept falling all the time because he still tried to walk. I don't know how many times I had to get him up and I knew I could no longer do it on my own. In fact, after the hospice nurse got him in the car, she came back into the house and told me that she did not think he would be coming back. And she was right. But I am so thankful for them. I don't know how old you are, but my husband and I were both on Medicare and Medicare paid for it all. He was considered a inpatient person. I don't know if my insurance would have paid for it if we had not been on medicare. But is definitely something to keep in mind, Pallative care did not really do anything except prescribe meds. The appts. were done online so they had no one to really assess him at home. We had visiting nurses for awhile. THey were nice but they can't do as much as hospice can. Hospice won't let your husband suffer. my husband also had advanced COPD as well and they also handled that at the good samartan home.
Blessings to both you and your husband.