Chronic Pain members - Welcome, please introduce yourself

Thanks for the welcome. I’m new to this group. I recently started painting management at Johns Hopkins and more will be revealed.

Hello everyone!

My name is Terry. I've been suffering from CRPS for many years. This crippling pain is primarily in my left arm, wrist and hand. I've seen more then 5 specialists, had all the testing done over the years, had my ulnar nerve relocated, had ketamine injections, all resulting in the CRPS diagnosis. Finally I had a Nevro stimulator implanted a year ago which is helping make the pain bearable along with Lyrica twice a day, Cymbalta once a day and Motrin as needed. Some days are worse than others. My fingers feel like they are breaking in two at times and the dull pain never goes away. I'm never warned when the worse pain will explode so making plans is difficult. Otherwise I'm trying to live my best life at 69. It helps to communicate with others, knowing you are not alone. AARP just recently had an article on nerve pain. It's worth reading. I made a consultation appointment to see Dr. Vu at Houston Methodist who is part of the pain management team featured in the article. Looking forward to a better chapter in my life.

PAIN management. Not painting😂

Hi I have been having pain in my back, left side thoracic area for 15 years off and on. I’m hoping to find someone that can help me figure out what this is.

Hi my name is Julian.Im 75 and been living with CIDP for 10+ yrs, Many chapters in this time and Honestly only 2 things have helped. Lidocaine patch for my hand and feet nerve crazies and Percocet , past 7 yrs. I used in short spurts for 50 yrs, due to knees and back, and in all this time I have never been high or couldn’t reduce even now from 100mg to 20 in a couple weeks.

Thank you for suggestion.
I’m sorry you have pain again after surgery, which scares me.
I go on Monday to a pain management and spine clinic.
It will be interesting to see how they’ll help.

Do you have a diagnosis and MRI images and where are you located? Let me know what they suggest. I'm very confused about what to do also. One neurologist suggested that I not have further surgery and another thinks I should. I'm going to a famous Spine clinic this week, Brigham Women's hospital in Boston to get an opinion there. Good luck and keep me posted.

I went Friday and they were no help when it comes to Neuropathy. Only Gabapentin was recommended. You can get that from your family doctor. Pain Clinics want to do epidural shots and implant that tens unit in your back.
How is this going to help Neuropathy? More scams!

Hi
I have just been newly diagnosed with CRPS Stage 2 (Chroninic regional pain syndrome)

Thank you for your response. I don't even know where to look.