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← Return to Waldenstroms Macroglobulemia
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I was diagnosed with WM early this past summer, after a bone marrow biopsy. My symptoms were an enlarged spleen and results of lab work.
I was started on 5 months of chemo 2days once a month but after 3 months was told I had a mutant cell that was blocking its effectively. Was taken off and 4 weeks later started on “Brukinsa.” Felt wonderful on Brukinsa. No after effects, no fatigue and blood work was approaching normal. But cancer can be devious. I was diagnosed with a second cancer unrelated and now under chemo and radiation for colon cancer. They took me off of the Brukinsa. I am now on Capecitabine plus a twice infusion and 5 day a week radiation for 5 weeks. My life is filled with appointments, lab work and new name of drugs that I don’t care to know. Once I am them rough this and back to treating WM, I hope my old life will be back and I can spend a summer of hiking, biking and traveling.
Replies to "I was diagnosed with WM early this past summer, after a bone marrow biopsy. My symptoms..."
I am so sorry to hear you’re dealing with 2 cancers at the same time. God love ya’! WM is my 3rd cancer, and thankfully the first 2 are behind me. I pray you stay strong and can get through this recent diagnosis soon so you can get back to feeling better, too, and enjoy your summer.
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Welcome to Connect, @adklg. I love your photo! You have a very positive inner radiance that will help get you through all of this medical drama.
I’m sorry to hear you also have colon cancer along with WM…nothing like a double whammy! It’s encouraging that you had such great results and no side effects from the Brukinsa for WM. Hopefully you can return to the treatments in the future. In the meantime, my goodness, 5 days a week for 5 weeks for radiation is a challenging schedule, along with the infusions. Some of the treatments we go through to rid our bodies of cancer can really test our mettle. I’ve been there too and people would tell me to take “one day at a time”…when realistically, it was more like 1 minute at a time to get through each day. But then we come out on the other side, survivors, thrivers and overcomers! I felt like a super hero…invincible (with a new vocabulary LOL)
Wishing you well on this cancer odyssey so you can get back to things you love besides hanging out in doctor’s offices. Will you please let me know how you’re coming along on your treatments? Sending a hug.