Hi Lynne,
I am also triple negative ET. You’re the first person that I’ve “met” on this forum who is TN ET. It is rare and thus not well-researched or understood. I’m so delighted to hear from you and about you, and to find you!😀♥️ I’ve had the diagnosis since my BMB in December, 2023.

I’m just seeing this thread. I will read your messages and see what others have said and I’ll add information that I’ve found. I actually attended a webinar about ET today, sponsored by the Leukemia and Lymphoma Society of Canada (I’m Canadian). The only thing that the expert said about TN was that it is still overactivity of the JAK2 pathway, but the cause has not yet been identified.
Thinking of you! I’ll jump back on this thread with links to any that might be helpful.
Take care!❤️